Active Luton has been recognised by Great Ormond Street Hospital (GOSH) for its support of a successful project to help young people with Cystic Fibrosis.

The trust has been supporting GOSH for the last two years by offering patients and specialist exercise trainers full access to its fitness facilities at Lewsey Sports Park.

The project is part of the GOSH INSPIRE-CF research programme which has helped the hospital better understand how exercise helps children and teenagers with Cystic Fibrosis.

This study specifically evaluated a new model of care for children with Cystic Fibrosis which incorporates regular exercise sessions. 66 children aged six to 15 have signed up to take part in the study.

The programme has been hailed a huge success by the researchers and Active Luton wants to build on the experience so it can continue to support local families affected by the condition.

Helen Barnett, Chief Executive of Active Luton, said: “We weren’t surprised to hear that the project was a research success as the children who used our facilities and their families kept telling us how much they were getting out of it.

“We wanted to ensure we could keep supporting local people with Cystic Fibrosis so we enquired about how we could continue it in some capacity.

“We were delighted that the great people of GOSH took us up on the offer and came in last week to train our health and wellbeing team so they will now be able to continue to support the patients and offer the exercise programme at all of our venues.” 

The hospital formally thanked Active Luton by presenting its health and wellbeing team with a certificate during their visit last week.

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For more information about the GOSH INSPIRE-CF research programme call 0207 9052178 or visit

For more information about Active Luton’s various health programmes visit or call 01582 400272.

Adding to a long list of pioneering initiatives and as a result of the success of our frequent flyer programme,  the Great Ormond Street Hospital (GOSH) Cystic Fibrosis (CF) Unit has set up an exciting new exercise. What is it and how might it make a difference? 

In May 2012, the CF Unit was awarded a Great Ormond Street Hospital Children’s Charity grant to fund a three-year research study called INSPIRE-CF.

This study is evaluating a new model of care for children with CF which incorporates regular exercise sessions. To date, 66 children aged six to 15 have signed up to take part in the study.

Half (50 per cent) of the children in the study will be allocated to Group 1, the control group, and the others to Group 2, the exercise group. Children in Group 1 will continue to receive their usual programme of specialist CF care while children in Group 2 will, in addition to this, receive a weekly supervised 30 to 60-minute exercise training session.

All children participating have now had their six-month follow-up testing and we will keep you updated as the study progresses.

The study is being led by Sean Ledger (Physiotherapist) and Dr Eleanor Main (Senior Lecturer in Children’s Physiotherapy). Dr Paul Aurora is the Consultant supervising the research programme.

If you would like more information on the study you can contact the INSPIRE-CF team on 0207 9052178 or 07500 918480.